Engaging research ethics committees to develop an ethics and governance framework for best practices in genomic research and biobanking in Africa: the H3Africa model
| dc.contributor.author | Tindana, Paulina | |
| dc.contributor.author | Yakubu, Aminu | |
| dc.contributor.author | Staunton, Ciara | |
| dc.contributor.author | Matimba, Alice | |
| dc.contributor.author | Littler, Katherine | |
| dc.contributor.author | Madden, Ebony | |
| dc.contributor.author | Munung, Nchangwi S | |
| dc.contributor.author | de Vries, Jantina | |
| dc.date.accessioned | 2019-12-10T09:21:42Z | |
| dc.date.available | 2019-12-10T09:21:42Z | |
| dc.date.issued | 2019-10-18 | |
| dc.date.updated | 2019-10-25T00:10:55Z | |
| dc.description.abstract | Abstract In the past decade, there has been an increase in genomic research and biobanking activities in Africa. Research initiatives such as the Human Heredity and Health in Africa (H3Africa) Consortium are contributing to the development of scientific capacity and infrastructure to support these studies on the continent. Despite this growth, genomic research and biobanking have raised important ethical challenges for key research stakeholders, including members of research ethics committees. One of these is the limited ethical and regulatory frameworks to guide the review and conduct of genomic studies, particularly in Africa. This paper is a reflection on a series of consultative activities with research ethics committees in Africa which informed the development of an ethics and governance framework for best practices in genomic research and biobanking in Africa. The paper highlights the engagement process and the lessoned learned. | |
| dc.identifier.apacitation | Tindana, P., Yakubu, A., Staunton, C., Matimba, A., Littler, K., Madden, E., ... de Vries, J. (2019). Engaging research ethics committees to develop an ethics and governance framework for best practices in genomic research and biobanking in Africa: the H3Africa model. http://hdl.handle.net/11427/30699 | en_ZA |
| dc.identifier.chicagocitation | Tindana, Paulina, Aminu Yakubu, Ciara Staunton, Alice Matimba, Katherine Littler, Ebony Madden, Nchangwi S Munung, and Jantina de Vries "Engaging research ethics committees to develop an ethics and governance framework for best practices in genomic research and biobanking in Africa: the H3Africa model." (2019) http://hdl.handle.net/11427/30699 | en_ZA |
| dc.identifier.citation | BMC Medical Ethics. 2019 Oct 18;20(1):69 | |
| dc.identifier.ris | TY - Journal Article AU - Tindana, Paulina AU - Yakubu, Aminu AU - Staunton, Ciara AU - Matimba, Alice AU - Littler, Katherine AU - Madden, Ebony AU - Munung, Nchangwi S AU - de Vries, Jantina AB - Abstract In the past decade, there has been an increase in genomic research and biobanking activities in Africa. Research initiatives such as the Human Heredity and Health in Africa (H3Africa) Consortium are contributing to the development of scientific capacity and infrastructure to support these studies on the continent. Despite this growth, genomic research and biobanking have raised important ethical challenges for key research stakeholders, including members of research ethics committees. One of these is the limited ethical and regulatory frameworks to guide the review and conduct of genomic studies, particularly in Africa. This paper is a reflection on a series of consultative activities with research ethics committees in Africa which informed the development of an ethics and governance framework for best practices in genomic research and biobanking in Africa. The paper highlights the engagement process and the lessoned learned. DA - 2019-10-18 DB - OpenUCT DP - University of Cape Town LK - https://open.uct.ac.za PY - 2019 T1 - Engaging research ethics committees to develop an ethics and governance framework for best practices in genomic research and biobanking in Africa: the H3Africa model TI - Engaging research ethics committees to develop an ethics and governance framework for best practices in genomic research and biobanking in Africa: the H3Africa model UR - http://hdl.handle.net/11427/30699 ER - | en_ZA |
| dc.identifier.uri | https://doi.org/10.1186/s12910-019-0398-2 | |
| dc.identifier.uri | http://hdl.handle.net/11427/30699 | |
| dc.identifier.vancouvercitation | Tindana P, Yakubu A, Staunton C, Matimba A, Littler K, Madden E, et al. Engaging research ethics committees to develop an ethics and governance framework for best practices in genomic research and biobanking in Africa: the H3Africa model. 2019; http://hdl.handle.net/11427/30699. | en_ZA |
| dc.language.rfc3066 | en | |
| dc.rights.holder | The Author(s). | |
| dc.title | Engaging research ethics committees to develop an ethics and governance framework for best practices in genomic research and biobanking in Africa: the H3Africa model | |
| dc.type | Journal Article |