Validation of a core outcome measure for palliative care in Africa: the APCA African Palliative Outcome Scale

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dc.contributor.authorHarding, Richarden_ZA
dc.contributor.authorSelman, Lucyen_ZA
dc.contributor.authorAgupio, Godfreyen_ZA
dc.contributor.authorDinat, Natalyaen_ZA
dc.contributor.authorDowning, Juliaen_ZA
dc.contributor.authorGwyther, Lizen_ZA
dc.contributor.authorMashao, Thandien_ZA
dc.contributor.authorMmoledi, Keletsoen_ZA
dc.contributor.authorMoll, Tonyen_ZA
dc.contributor.authorSebuyira, Lydiaen_ZA
dc.contributor.authorPanjatovic, Barbaraen_ZA
dc.contributor.authorHigginson, Ireneen_ZA
dc.date.accessioned2015-11-11T12:04:13Z
dc.date.available2015-11-11T12:04:13Z
dc.date.issued2010en_ZA
dc.description.abstractBACKGROUND: Despite the burden of progressive incurable disease in Africa, there is almost no evidence on patient care or outcomes. A primary reason has been the lack of appropriate locally-validated outcome tools. This study aimed to validate a multidimensional scale (the APCA African Palliative Outcome Scale) in a multi-centred international study. METHODS: Validation was conducted across 5 African services and in 3 phases: Phase 1. Face validity: content analysis of qualitative interviews and cognitive interviewing of POS; Phase 2. Construct validity: correlation of POS with Missoula-Vitas Quality of Life Index (Spearman's rank tests); Phase 3. Internal consistency (Cronbach's alpha calculated twice using 2 datasets), test-retest reliability (intraclass correlation coefficients calculated for 2 time points) and time to complete (calculated twice using 2 datasets). RESULTS: The validation involved 682 patients and 437 family carers, interviewed in 8 different languages. Phase 1. Qualitative interviews (N = 90 patients; N = 38 carers) showed POS items mapped well onto identified needs; cognitive interviews (N = 73 patients; N = 29 carers) demonstrated good interpretation; Phase 2. POS-MVQoLI Spearman's rank correlations were low-moderate as expected (N = 285); Phase 3. (N = 307, 2nd assessment mean 21.2 hours after first, SD 7.2) Cronbach's Alpha was 0.6 on both datasets, indicating expected moderate internal consistency; test-retest found high intra-class correlation coefficients for all items (0.78-0.89); median time to complete 7 mins, reducing to 5 mins at second visit. CONCLUSIONS: The APCA African POS has sound psychometric properties, is well comprehended and brief to use. Application of this tool offers the opportunity to at last address the omissions of palliative care research in Africa.en_ZA
dc.identifier.apacitationHarding, R., Selman, L., Agupio, G., Dinat, N., Downing, J., Gwyther, L., ... Higginson, I. (2010). Validation of a core outcome measure for palliative care in Africa: the APCA African Palliative Outcome Scale. <i>Health and Quality of Life Outcomes</i>, http://hdl.handle.net/11427/14908en_ZA
dc.identifier.chicagocitationHarding, Richard, Lucy Selman, Godfrey Agupio, Natalya Dinat, Julia Downing, Liz Gwyther, Thandi Mashao, et al "Validation of a core outcome measure for palliative care in Africa: the APCA African Palliative Outcome Scale." <i>Health and Quality of Life Outcomes</i> (2010) http://hdl.handle.net/11427/14908en_ZA
dc.identifier.citationHarding, R., Selman, L., Agupio, G., Dinat, N., Downing, J., Gwyther, L., ... & Higginson, I. J. (2010). Validation of a core outcome measure for palliative care in Africa: the APCA African Palliative Outcome Scale. Health Qual Life Outcomes, 8(10), 1477-7525.en_ZA
dc.identifier.ris TY - Journal Article AU - Harding, Richard AU - Selman, Lucy AU - Agupio, Godfrey AU - Dinat, Natalya AU - Downing, Julia AU - Gwyther, Liz AU - Mashao, Thandi AU - Mmoledi, Keletso AU - Moll, Tony AU - Sebuyira, Lydia AU - Panjatovic, Barbara AU - Higginson, Irene AB - BACKGROUND: Despite the burden of progressive incurable disease in Africa, there is almost no evidence on patient care or outcomes. A primary reason has been the lack of appropriate locally-validated outcome tools. This study aimed to validate a multidimensional scale (the APCA African Palliative Outcome Scale) in a multi-centred international study. METHODS: Validation was conducted across 5 African services and in 3 phases: Phase 1. Face validity: content analysis of qualitative interviews and cognitive interviewing of POS; Phase 2. Construct validity: correlation of POS with Missoula-Vitas Quality of Life Index (Spearman's rank tests); Phase 3. Internal consistency (Cronbach's alpha calculated twice using 2 datasets), test-retest reliability (intraclass correlation coefficients calculated for 2 time points) and time to complete (calculated twice using 2 datasets). RESULTS: The validation involved 682 patients and 437 family carers, interviewed in 8 different languages. Phase 1. Qualitative interviews (N = 90 patients; N = 38 carers) showed POS items mapped well onto identified needs; cognitive interviews (N = 73 patients; N = 29 carers) demonstrated good interpretation; Phase 2. POS-MVQoLI Spearman's rank correlations were low-moderate as expected (N = 285); Phase 3. (N = 307, 2nd assessment mean 21.2 hours after first, SD 7.2) Cronbach's Alpha was 0.6 on both datasets, indicating expected moderate internal consistency; test-retest found high intra-class correlation coefficients for all items (0.78-0.89); median time to complete 7 mins, reducing to 5 mins at second visit. CONCLUSIONS: The APCA African POS has sound psychometric properties, is well comprehended and brief to use. Application of this tool offers the opportunity to at last address the omissions of palliative care research in Africa. DA - 2010 DB - OpenUCT DO - 10.1186/1477-7525-8-10 DP - University of Cape Town J1 - Health and Quality of Life Outcomes LK - https://open.uct.ac.za PB - University of Cape Town PY - 2010 T1 - Validation of a core outcome measure for palliative care in Africa: the APCA African Palliative Outcome Scale TI - Validation of a core outcome measure for palliative care in Africa: the APCA African Palliative Outcome Scale UR - http://hdl.handle.net/11427/14908 ER - en_ZA
dc.identifier.urihttp://hdl.handle.net/11427/14908
dc.identifier.urihttp://dx.doi.org/10.1186/1477-7525-8-10
dc.identifier.vancouvercitationHarding R, Selman L, Agupio G, Dinat N, Downing J, Gwyther L, et al. Validation of a core outcome measure for palliative care in Africa: the APCA African Palliative Outcome Scale. Health and Quality of Life Outcomes. 2010; http://hdl.handle.net/11427/14908.en_ZA
dc.language.isoengen_ZA
dc.publisherBioMed Central Ltden_ZA
dc.publisher.departmentDepartment of Public Health and Family Medicineen_ZA
dc.publisher.facultyFaculty of Health Sciencesen_ZA
dc.publisher.institutionUniversity of Cape Town
dc.rightsThis is an Open Access article distributed under the terms of the Creative Commons Attribution Licenseen_ZA
dc.rights.holder2010 Harding et al; licensee BioMed Central Ltd.en_ZA
dc.rights.urihttp://creativecommons.org/licenses/by/2.0en_ZA
dc.sourceHealth and Quality of Life Outcomesen_ZA
dc.source.urihttp://hqlo.biomedcentral.com/en_ZA
dc.subject.otherPalliative Medicineen_ZA
dc.subject.otherPalliative Careen_ZA
dc.titleValidation of a core outcome measure for palliative care in Africa: the APCA African Palliative Outcome Scaleen_ZA
dc.typeJournal Articleen_ZA
uct.type.filetypeText
uct.type.filetypeImage
uct.type.publicationResearchen_ZA
uct.type.resourceArticleen_ZA
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