Exploring the barriers to disclosure of life-threatening illness to children in Blantyre, Malawi

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dc.contributor.advisorGwyther, Lizen_ZA
dc.contributor.advisorMasiye, Francisen_ZA
dc.contributor.authorBunn, Maryen_ZA
dc.date.accessioned2014-12-27T14:09:27Z
dc.date.available2014-12-27T14:09:27Z
dc.date.issued2009en_ZA
dc.descriptionIncludes bibliographical references (leaves 92-93).en_ZA
dc.description.abstractIt is recognised in the western world that children with life-threatening or life-limiting illness benefit from sharing of information about their illness in an age-appropriate way as this enables children to feel empowered, in some control of their illness and less isolated. Currently in Malawi, as in the rest of Africa, there are increasing numbers of children facing the diagnosis of life-threatening or life-limiting illness and requiring compassionate palliative care. However, in Malawi, children are still told very little of their illness. This study was therefore designed to use qualitative methods to investigate the barriers to disclosure of life-threatening illness to children in Malawi. It sought to obtain information regarding Malawians' thoughts and feelings about childhood life threatening illness and their attitudes to talking about this to children. It also explored the cultural context and concerns leading to barriers to disclosing to children and identified what children would like to know about their illness. A set of recommendations for health workers in paediatric palliative care in Malawi have been developed from the findings of this study, to facilitate explanation and communication with children and families regarding life-threatening and life-limiting illness, in order to equip and empower children to participate in decision making and come to a position of acceptance and peace.en_ZA
dc.identifier.apacitationBunn, M. (2009). <i>Exploring the barriers to disclosure of life-threatening illness to children in Blantyre, Malawi</i>. (Thesis). University of Cape Town ,Faculty of Health Sciences ,Department of Public Health and Family Medicine. Retrieved from http://hdl.handle.net/11427/10223en_ZA
dc.identifier.chicagocitationBunn, Mary. <i>"Exploring the barriers to disclosure of life-threatening illness to children in Blantyre, Malawi."</i> Thesis., University of Cape Town ,Faculty of Health Sciences ,Department of Public Health and Family Medicine, 2009. http://hdl.handle.net/11427/10223en_ZA
dc.identifier.citationBunn, M. 2009. Exploring the barriers to disclosure of life-threatening illness to children in Blantyre, Malawi. University of Cape Town.en_ZA
dc.identifier.ris TY - Thesis / Dissertation AU - Bunn, Mary AB - It is recognised in the western world that children with life-threatening or life-limiting illness benefit from sharing of information about their illness in an age-appropriate way as this enables children to feel empowered, in some control of their illness and less isolated. Currently in Malawi, as in the rest of Africa, there are increasing numbers of children facing the diagnosis of life-threatening or life-limiting illness and requiring compassionate palliative care. However, in Malawi, children are still told very little of their illness. This study was therefore designed to use qualitative methods to investigate the barriers to disclosure of life-threatening illness to children in Malawi. It sought to obtain information regarding Malawians' thoughts and feelings about childhood life threatening illness and their attitudes to talking about this to children. It also explored the cultural context and concerns leading to barriers to disclosing to children and identified what children would like to know about their illness. A set of recommendations for health workers in paediatric palliative care in Malawi have been developed from the findings of this study, to facilitate explanation and communication with children and families regarding life-threatening and life-limiting illness, in order to equip and empower children to participate in decision making and come to a position of acceptance and peace. DA - 2009 DB - OpenUCT DP - University of Cape Town LK - https://open.uct.ac.za PB - University of Cape Town PY - 2009 T1 - Exploring the barriers to disclosure of life-threatening illness to children in Blantyre, Malawi TI - Exploring the barriers to disclosure of life-threatening illness to children in Blantyre, Malawi UR - http://hdl.handle.net/11427/10223 ER - en_ZA
dc.identifier.urihttp://hdl.handle.net/11427/10223
dc.identifier.vancouvercitationBunn M. Exploring the barriers to disclosure of life-threatening illness to children in Blantyre, Malawi. [Thesis]. University of Cape Town ,Faculty of Health Sciences ,Department of Public Health and Family Medicine, 2009 [cited yyyy month dd]. Available from: http://hdl.handle.net/11427/10223en_ZA
dc.language.isoengen_ZA
dc.publisher.departmentDepartment of Public Health and Family Medicineen_ZA
dc.publisher.facultyFaculty of Health Sciencesen_ZA
dc.publisher.institutionUniversity of Cape Town
dc.titleExploring the barriers to disclosure of life-threatening illness to children in Blantyre, Malawien_ZA
dc.typeMaster Thesis
dc.type.qualificationlevelMasters
dc.type.qualificationnameMPhilen_ZA
uct.type.filetypeText
uct.type.filetypeImage
uct.type.publicationResearchen_ZA
uct.type.resourceThesisen_ZA
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