Valuing EQ-5D-Y: the current state of play

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dc.contributor.authorDevlin, N
dc.contributor.authorPan, T
dc.contributor.authorKreimeier, S
dc.contributor.authorVerstraete, J
dc.contributor.authorStolk, E
dc.contributor.authorRand, K
dc.contributor.authorHerdman, M
dc.date.accessioned2022-10-18T15:07:56Z
dc.date.available2022-10-18T15:07:56Z
dc.date.issued2022-07-06
dc.date.updated2022-07-10T03:19:13Z
dc.description.abstractBackground For nearly a decade, value sets for the EQ-5D-Y were not available, reflecting challenges in valuing child HRQoL. A methodological research programme led to publication of a valuation protocol in 2020, which was rapidly taken up by local study teams. By the end of 2022, between 11 and 17 EQ-5D-Y value sets will be available, more than for any other child HRQoL measure. It is timely to review the experience of those using the protocol to identify early learnings and remaining issues where more research is needed. Methods In June 2021, the EuroQol Group organised a three-day workshop, bringing together all those involved in EQ-5D-Y value set studies and related methodological research concerning EQ-5D-Y and valuation. Workshop discussions were captured by note taking and recording all sessions and online chat. A narrative summary of all sessions was produced and synthesised to identify points of agreement and aspects of methods where uncertainty remains. Results There was broad agreement that DCE is working well as the principal valuation method. However, the most appropriate means of anchoring the latent scale values produced by DCE remains unclear. Some studies have deviated from the protocol by extending the number of states included in TTO tasks, to better support modelling of DCE and TTO. There is ongoing discussion about the relative merits of alternative variants of TTO and other methods for anchoring. Very few studies have consulted with local end-users to gauge the acceptability of methods used to value EQ-5D-Y. Conclusions Priority areas for research include testing alternative methods for anchoring DCE data; exploring the preferences of adolescents; and scale differences in values for EQ-5D-Y and adult EQ-5D states, and implications of such differences for the use of EQ-5D-Y values in HTA. Given the normative elements of the protocol, engaging with HTA bodies and other local users should be the first step for all future value set studies. Value sets undertaken to date are for the three-level EQ-5D-Y. However, the issues discussed in this paper are equally relevant to valuation of the five-level version of EQ-5D-Y; indeed, similar challenges are encountered valuing any measure of child HRQoL.en_US
dc.identifier.apacitationDevlin, N., Pan, T., Kreimeier, S., Verstraete, J., Stolk, E., Rand, K., & Herdman, M. (2022). Valuing EQ-5D-Y: the current state of play. <i>Health and Quality of Life Outcome</i>, 20(1), 105. http://hdl.handle.net/11427/36844en_ZA
dc.identifier.chicagocitationDevlin, N, T Pan, S Kreimeier, J Verstraete, E Stolk, K Rand, and M Herdman "Valuing EQ-5D-Y: the current state of play." <i>Health and Quality of Life Outcome</i> 20, 1. (2022): 105. http://hdl.handle.net/11427/36844en_ZA
dc.identifier.citationDevlin, N., Pan, T., Kreimeier, S., Verstraete, J., Stolk, E., Rand, K. & Herdman, M. 2022. Valuing EQ-5D-Y: the current state of play. <i>Health and Quality of Life Outcome.</i> 20(1):105. http://hdl.handle.net/11427/36844en_ZA
dc.identifier.ris TY - Journal Article AU - Devlin, N AU - Pan, T AU - Kreimeier, S AU - Verstraete, J AU - Stolk, E AU - Rand, K AU - Herdman, M AB - Background For nearly a decade, value sets for the EQ-5D-Y were not available, reflecting challenges in valuing child HRQoL. A methodological research programme led to publication of a valuation protocol in 2020, which was rapidly taken up by local study teams. By the end of 2022, between 11 and 17 EQ-5D-Y value sets will be available, more than for any other child HRQoL measure. It is timely to review the experience of those using the protocol to identify early learnings and remaining issues where more research is needed. Methods In June 2021, the EuroQol Group organised a three-day workshop, bringing together all those involved in EQ-5D-Y value set studies and related methodological research concerning EQ-5D-Y and valuation. Workshop discussions were captured by note taking and recording all sessions and online chat. A narrative summary of all sessions was produced and synthesised to identify points of agreement and aspects of methods where uncertainty remains. Results There was broad agreement that DCE is working well as the principal valuation method. However, the most appropriate means of anchoring the latent scale values produced by DCE remains unclear. Some studies have deviated from the protocol by extending the number of states included in TTO tasks, to better support modelling of DCE and TTO. There is ongoing discussion about the relative merits of alternative variants of TTO and other methods for anchoring. Very few studies have consulted with local end-users to gauge the acceptability of methods used to value EQ-5D-Y. Conclusions Priority areas for research include testing alternative methods for anchoring DCE data; exploring the preferences of adolescents; and scale differences in values for EQ-5D-Y and adult EQ-5D states, and implications of such differences for the use of EQ-5D-Y values in HTA. Given the normative elements of the protocol, engaging with HTA bodies and other local users should be the first step for all future value set studies. Value sets undertaken to date are for the three-level EQ-5D-Y. However, the issues discussed in this paper are equally relevant to valuation of the five-level version of EQ-5D-Y; indeed, similar challenges are encountered valuing any measure of child HRQoL. DA - 2022-07-06 DB - OpenUCT DP - University of Cape Town IS - 1 J1 - Health and Quality of Life Outcome KW - Paediatric KW - HRQoL KW - EQ-5D-Y KW - Utilities KW - Values KW - DCE KW - TTO KW - QALYs KW - Children KW - Adolescents KW - Stated preferences LK - https://open.uct.ac.za PY - 2022 T1 - Valuing EQ-5D-Y: the current state of play TI - Valuing EQ-5D-Y: the current state of play UR - http://hdl.handle.net/11427/36844 ER - en_ZA
dc.identifier.urihttps://doi.org/10.1186/s12955-022-01998-8
dc.identifier.urihttp://hdl.handle.net/11427/36844
dc.identifier.vancouvercitationDevlin N, Pan T, Kreimeier S, Verstraete J, Stolk E, Rand K, et al. Valuing EQ-5D-Y: the current state of play. Health and Quality of Life Outcome. 2022;20(1):105. http://hdl.handle.net/11427/36844.en_ZA
dc.language.isoenen_US
dc.language.rfc3066en
dc.publisher.departmentDepartment of Paediatrics and Child Healthen_US
dc.publisher.facultyFaculty of Health Sciencesen_US
dc.rights.holderThe Author(s)
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/en_US
dc.sourceHealth and Quality of Life Outcomeen_US
dc.source.journalissue1en_US
dc.source.journalvolume20en_US
dc.source.pagination105en_US
dc.source.urihttps://hqlo.biomedcentral.com/
dc.subjectPaediatricen_US
dc.subjectHRQoLen_US
dc.subjectEQ-5D-Yen_US
dc.subjectUtilitiesen_US
dc.subjectValuesen_US
dc.subjectDCEen_US
dc.subjectTTOen_US
dc.subjectQALYsen_US
dc.subjectChildrenen_US
dc.subjectAdolescentsen_US
dc.subjectStated preferencesen_US
dc.titleValuing EQ-5D-Y: the current state of playen_US
dc.typeJournal Articleen_US
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