HIV status disclosure to perinatally-infected adolescents in Zimbabwe: a qualitative study of adolescent and healthcare worker perspectives

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dc.contributor.authorKidia, Khameer Ken_ZA
dc.contributor.authorMupambireyi, Zivaien_ZA
dc.contributor.authorCluver, Lucieen_ZA
dc.contributor.authorNdhlovu, Chiratidzo Een_ZA
dc.contributor.authorBorok, Margareten_ZA
dc.contributor.authorFerrand, Rashida Aen_ZA
dc.date.accessioned2016-01-11T06:57:07Z
dc.date.available2016-01-11T06:57:07Z
dc.date.issued2014en_ZA
dc.description.abstractIntroduction & Objectives: Due to the scale up of antiretroviral therapy, increasing numbers of HIV-infected children are living into adolescence. As these children grow and surpass the immediate threat of death, the issue of informing them of their HIV status arises. This study aimed to understand how perinatally-infected adolescents learn about their HIV-status as well as to examine their preferences for the disclosure process. METHODS: In-depth interviews were conducted with 31 (14 male, 17 female) perinatally-infected adolescents aged 16-20 at an HIV clinic in Harare, Zimbabwe, and focused on adolescents' experiences of disclosure. In addition, 15 (1 male, 14 female) healthcare workers participated in two focus groups that were centred on healthcare workers' practices surrounding disclosure in the clinic. Purposive sampling was used to recruit participants. A coding frame was developed and major themes were extracted using grounded theory methods. RESULTS: Healthcare workers encouraged caregivers to initiate disclosure in the home environment. However, many adolescents preferred disclosure to take place in the presence of healthcare workers at the clinic because it gave them access to accurate information as well as an environment that made test results seem more credible. Adolescents learned more specific information about living with an HIV-positive status and the meaning of that status from shared experiences among peers at the clinic. CONCLUSIONS: HIV-status disclosure to adolescents is distinct from disclosure to younger children and requires tailored, age-appropriate guidelines. Disclosure to this age group in a healthcare setting may help overcome some of the barriers associated with caregivers disclosing in the home environment and make the HIV status seem more credible to an adolescent. The study also highlights the value of peer support among adolescents, which could help reduce the burden of psychosocial care on caregivers and healthcare workers.en_ZA
dc.identifier.apacitationKidia, K. K., Mupambireyi, Z., Cluver, L., Ndhlovu, C. E., Borok, M., & Ferrand, R. A. (2014). HIV status disclosure to perinatally-infected adolescents in Zimbabwe: a qualitative study of adolescent and healthcare worker perspectives. <i>PLoS One</i>, http://hdl.handle.net/11427/16317en_ZA
dc.identifier.chicagocitationKidia, Khameer K, Zivai Mupambireyi, Lucie Cluver, Chiratidzo E Ndhlovu, Margaret Borok, and Rashida A Ferrand "HIV status disclosure to perinatally-infected adolescents in Zimbabwe: a qualitative study of adolescent and healthcare worker perspectives." <i>PLoS One</i> (2014) http://hdl.handle.net/11427/16317en_ZA
dc.identifier.citationKidia, K. K., Mupambireyi, Z., Cluver, L., Ndhlovu, C. E., Borok, M., & Ferrand, R. A. (2014). HIV status disclosure to perinatally-infected adolescents in Zimbabwe: a qualitative study of adolescent and healthcare worker perspectives. PloS one, 9(1). doi:10.1371/journal.pone.0087322en_ZA
dc.identifier.ris TY - Journal Article AU - Kidia, Khameer K AU - Mupambireyi, Zivai AU - Cluver, Lucie AU - Ndhlovu, Chiratidzo E AU - Borok, Margaret AU - Ferrand, Rashida A AB - Introduction & Objectives: Due to the scale up of antiretroviral therapy, increasing numbers of HIV-infected children are living into adolescence. As these children grow and surpass the immediate threat of death, the issue of informing them of their HIV status arises. This study aimed to understand how perinatally-infected adolescents learn about their HIV-status as well as to examine their preferences for the disclosure process. METHODS: In-depth interviews were conducted with 31 (14 male, 17 female) perinatally-infected adolescents aged 16-20 at an HIV clinic in Harare, Zimbabwe, and focused on adolescents' experiences of disclosure. In addition, 15 (1 male, 14 female) healthcare workers participated in two focus groups that were centred on healthcare workers' practices surrounding disclosure in the clinic. Purposive sampling was used to recruit participants. A coding frame was developed and major themes were extracted using grounded theory methods. RESULTS: Healthcare workers encouraged caregivers to initiate disclosure in the home environment. However, many adolescents preferred disclosure to take place in the presence of healthcare workers at the clinic because it gave them access to accurate information as well as an environment that made test results seem more credible. Adolescents learned more specific information about living with an HIV-positive status and the meaning of that status from shared experiences among peers at the clinic. CONCLUSIONS: HIV-status disclosure to adolescents is distinct from disclosure to younger children and requires tailored, age-appropriate guidelines. Disclosure to this age group in a healthcare setting may help overcome some of the barriers associated with caregivers disclosing in the home environment and make the HIV status seem more credible to an adolescent. The study also highlights the value of peer support among adolescents, which could help reduce the burden of psychosocial care on caregivers and healthcare workers. DA - 2014 DB - OpenUCT DO - 10.1371/journal.pone.0087322 DP - University of Cape Town J1 - PLoS One LK - https://open.uct.ac.za PB - University of Cape Town PY - 2014 T1 - HIV status disclosure to perinatally-infected adolescents in Zimbabwe: a qualitative study of adolescent and healthcare worker perspectives TI - HIV status disclosure to perinatally-infected adolescents in Zimbabwe: a qualitative study of adolescent and healthcare worker perspectives UR - http://hdl.handle.net/11427/16317 ER - en_ZA
dc.identifier.urihttp://hdl.handle.net/11427/16317
dc.identifier.urihttp://dx.doi.org/10.1371/journal.pone.0087322
dc.identifier.vancouvercitationKidia KK, Mupambireyi Z, Cluver L, Ndhlovu CE, Borok M, Ferrand RA. HIV status disclosure to perinatally-infected adolescents in Zimbabwe: a qualitative study of adolescent and healthcare worker perspectives. PLoS One. 2014; http://hdl.handle.net/11427/16317.en_ZA
dc.language.isoengen_ZA
dc.publisherPublic Library of Scienceen_ZA
dc.publisher.departmentDepartment of Psychiatry and Mental Healthen_ZA
dc.publisher.facultyFaculty of Health Sciencesen_ZA
dc.publisher.institutionUniversity of Cape Town
dc.rightsThis is an open-access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.en_ZA
dc.rights.holder© 2014 Kidia et alen_ZA
dc.rights.urihttp://creativecommons.org/licenses/by/4.0en_ZA
dc.sourcePLoS Oneen_ZA
dc.source.urihttp://journals.plos.org/plosoneen_ZA
dc.subject.otherAdolescentsen_ZA
dc.subject.otherHIVen_ZA
dc.subject.otherChildrenen_ZA
dc.subject.otherAIDSen_ZA
dc.subject.otherHealth careen_ZA
dc.subject.otherLearningen_ZA
dc.subject.otherZimbabween_ZA
dc.subject.otherAntiretroviral therapyen_ZA
dc.titleHIV status disclosure to perinatally-infected adolescents in Zimbabwe: a qualitative study of adolescent and healthcare worker perspectivesen_ZA
dc.typeJournal Articleen_ZA
uct.type.filetypeText
uct.type.filetypeImage
uct.type.publicationResearchen_ZA
uct.type.resourceArticleen_ZA
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