“A very humiliating illness”: a qualitative study of patient-centered Care for Rifampicin-Resistant Tuberculosis in South Africa

dc.contributor.authorFurin, Jennifer
dc.contributor.authorLoveday, Marian
dc.contributor.authorHlangu, Sindisiwe
dc.contributor.authorDickson-Hall, Lindy
dc.contributor.authorle Roux, Sacha
dc.contributor.authorNicol, Mark
dc.contributor.authorCox, Helen
dc.date.accessioned2020-01-20T06:50:55Z
dc.date.available2020-01-20T06:50:55Z
dc.date.issued2020-01-17
dc.date.updated2020-01-19T04:31:46Z
dc.description.abstractAbstract Background Patient-centered care is pillar 1 of the “End TB” strategy, but little has been documented in the literature about what this means for people living with rifampicin-resistant (RR-TB). Optimizing care for such individuals requires a better understanding of the challenges they face and the support they need. Methods A qualitative study was done among persons living with RR-TB and members of their support network. A purposive sample was selected from a larger study population and open-ended interviews were conducted using a semi-standard interview guide. Interviews were recorded and transcribed and the content analyzed using an iterative thematic analysis based in grounded theory. Results 16 participants were interviewed from three different provinces. Four distinct periods in which support was needed were identified: 1) pre-diagnosis; 2) pre-treatment; 3) treatment; and 4) post-treatment. Challenges common in all four periods included: socioeconomic issues, centralized care, and the need for better counseling at multiple levels. Conclusions Beyond being a “very humiliating illness”, RR-TB robs people of their physical, social, economic, psychological, and emotional well-being far beyond the period when treatment is being administered. Efforts to tackle these issues are as important as new drugs and diagnostics in the fight against TB.
dc.identifier.apacitationFurin, J., Loveday, M., Hlangu, S., Dickson-Hall, L., le Roux, S., Nicol, M., & Cox, H. (2020). “A very humiliating illness”: a qualitative study of patient-centered Care for Rifampicin-Resistant Tuberculosis in South Africa. http://hdl.handle.net/11427/30757en_ZA
dc.identifier.chicagocitationFurin, Jennifer, Marian Loveday, Sindisiwe Hlangu, Lindy Dickson-Hall, Sacha le Roux, Mark Nicol, and Helen Cox "“A very humiliating illness”: a qualitative study of patient-centered Care for Rifampicin-Resistant Tuberculosis in South Africa." (2020) http://hdl.handle.net/11427/30757en_ZA
dc.identifier.citationBMC Public Health. 2020 Jan 17;20(1):76
dc.identifier.ris TY - Journal Article AU - Furin, Jennifer AU - Loveday, Marian AU - Hlangu, Sindisiwe AU - Dickson-Hall, Lindy AU - le Roux, Sacha AU - Nicol, Mark AU - Cox, Helen AB - Abstract Background Patient-centered care is pillar 1 of the “End TB” strategy, but little has been documented in the literature about what this means for people living with rifampicin-resistant (RR-TB). Optimizing care for such individuals requires a better understanding of the challenges they face and the support they need. Methods A qualitative study was done among persons living with RR-TB and members of their support network. A purposive sample was selected from a larger study population and open-ended interviews were conducted using a semi-standard interview guide. Interviews were recorded and transcribed and the content analyzed using an iterative thematic analysis based in grounded theory. Results 16 participants were interviewed from three different provinces. Four distinct periods in which support was needed were identified: 1) pre-diagnosis; 2) pre-treatment; 3) treatment; and 4) post-treatment. Challenges common in all four periods included: socioeconomic issues, centralized care, and the need for better counseling at multiple levels. Conclusions Beyond being a “very humiliating illness”, RR-TB robs people of their physical, social, economic, psychological, and emotional well-being far beyond the period when treatment is being administered. Efforts to tackle these issues are as important as new drugs and diagnostics in the fight against TB. DA - 2020-01-17 DB - OpenUCT DP - University of Cape Town KW - South Africa KW - Costs KW - Challenges KW - Social support KW - Counseling LK - https://open.uct.ac.za PY - 2020 T1 - “A very humiliating illness”: a qualitative study of patient-centered Care for Rifampicin-Resistant Tuberculosis in South Africa TI - “A very humiliating illness”: a qualitative study of patient-centered Care for Rifampicin-Resistant Tuberculosis in South Africa UR - http://hdl.handle.net/11427/30757 ER - en_ZA
dc.identifier.urihttps://doi.org/10.1186/s12889-019-8035-z
dc.identifier.urihttp://hdl.handle.net/11427/30757
dc.identifier.vancouvercitationFurin J, Loveday M, Hlangu S, Dickson-Hall L, le Roux S, Nicol M, et al. “A very humiliating illness”: a qualitative study of patient-centered Care for Rifampicin-Resistant Tuberculosis in South Africa. 2020; http://hdl.handle.net/11427/30757.en_ZA
dc.language.rfc3066en
dc.rights.holderThe Author(s).
dc.subjectSouth Africa
dc.subjectCosts
dc.subjectChallenges
dc.subjectSocial support
dc.subjectCounseling
dc.title“A very humiliating illness”: a qualitative study of patient-centered Care for Rifampicin-Resistant Tuberculosis in South Africa
dc.typeJournal Article
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