An evaluation of psychometric properties of caregiver burden outcome measures used in caregivers of children with cerebral palsy: a systematic review protocol

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dc.contributor.authorDambi, Jermaine M
dc.contributor.authorJelsma, Jennifer
dc.contributor.authorMlambo, Tecla
dc.contributor.authorChiwaridzo, Matthew
dc.contributor.authorDangarembizi-Munambah, Nyaradzai
dc.contributor.authorCorten, Lieselotte
dc.date.accessioned2016-05-25T05:55:18Z
dc.date.available2016-05-25T05:55:18Z
dc.date.issued2016-03-09
dc.date.updated2016-05-19T09:17:06Z
dc.description.abstractBackground: Cerebral palsy (CP) is the most common, life-long paediatric disability. Taking care of a child with CP often results in caregiver burden/strain in the long run. As caregivers play an essential role in the rehabilitation of these children, it is therefore important to routinely screen for health outcomes in informal caregivers. Consequently, a plethora of caregiver burden outcome measures have been developed; however, there is a dearth of evidence of the most psychometrically sound tools. Therefore, the broad objective of this systematic review is to evaluate the psychometrical properties and clinical utility of tools used to measure caregiver burden in caregivers of children with CP. Methods/design: This is a systematic review for the evaluation of the psychometric properties of caregiver burden outcome tools. Two independent and blinded reviewers will search articles on PubMed, Scopus, Web of Science, CINAHL, PsychINFO and Africa-Wide Google Scholar. Information will be analysed using predefined criteria. Thereafter, three independent reviewers will then screen the retrieved articles. The methodological quality of studies on the development and validation of the identified tools will be evaluated using the four point COnsensus-based Standards for the selection of health Measurement INstruments (COSMIN) checklist. Finally, the psychometric properties of the tools which were developed and validated from methodological sound studies will then be analysed using predefined criteria. Discussion: The proposed systematic review will give an extensive review of the psychometrical properties of tools used to measure caregiver burden in caregivers of children with CP. We hope to identify tools that can be used to accurately screen for caregiver burden both in clinical setting and for research purposes.en_ZA
dc.identifier.apacitationDambi, J. M., Jelsma, J., Mlambo, T., Chiwaridzo, M., Dangarembizi-Munambah, N., & Corten, L. (2016). An evaluation of psychometric properties of caregiver burden outcome measures used in caregivers of children with cerebral palsy: a systematic review protocol. <i>Systematic reviews</i>, http://hdl.handle.net/11427/19838en_ZA
dc.identifier.chicagocitationDambi, Jermaine M, Jennifer Jelsma, Tecla Mlambo, Matthew Chiwaridzo, Nyaradzai Dangarembizi-Munambah, and Lieselotte Corten "An evaluation of psychometric properties of caregiver burden outcome measures used in caregivers of children with cerebral palsy: a systematic review protocol." <i>Systematic reviews</i> (2016) http://hdl.handle.net/11427/19838en_ZA
dc.identifier.citationDambi, J. M., Jelsma, J., Mlambo, T., Chiwaridzo, M., Dangarembizi-Munambah, N., & Corten, L. (2016). An evaluation of psychometric properties of caregiver burden outcome measures used in caregivers of children with cerebral palsy: a systematic review protocol. Systematic reviews, 5(1), 42.en_ZA
dc.identifier.issn2046-4053en_ZA
dc.identifier.ris TY - Journal Article AU - Dambi, Jermaine M AU - Jelsma, Jennifer AU - Mlambo, Tecla AU - Chiwaridzo, Matthew AU - Dangarembizi-Munambah, Nyaradzai AU - Corten, Lieselotte AB - Background: Cerebral palsy (CP) is the most common, life-long paediatric disability. Taking care of a child with CP often results in caregiver burden/strain in the long run. As caregivers play an essential role in the rehabilitation of these children, it is therefore important to routinely screen for health outcomes in informal caregivers. Consequently, a plethora of caregiver burden outcome measures have been developed; however, there is a dearth of evidence of the most psychometrically sound tools. Therefore, the broad objective of this systematic review is to evaluate the psychometrical properties and clinical utility of tools used to measure caregiver burden in caregivers of children with CP. Methods/design: This is a systematic review for the evaluation of the psychometric properties of caregiver burden outcome tools. Two independent and blinded reviewers will search articles on PubMed, Scopus, Web of Science, CINAHL, PsychINFO and Africa-Wide Google Scholar. Information will be analysed using predefined criteria. Thereafter, three independent reviewers will then screen the retrieved articles. The methodological quality of studies on the development and validation of the identified tools will be evaluated using the four point COnsensus-based Standards for the selection of health Measurement INstruments (COSMIN) checklist. Finally, the psychometric properties of the tools which were developed and validated from methodological sound studies will then be analysed using predefined criteria. Discussion: The proposed systematic review will give an extensive review of the psychometrical properties of tools used to measure caregiver burden in caregivers of children with CP. We hope to identify tools that can be used to accurately screen for caregiver burden both in clinical setting and for research purposes. DA - 2016-03-09 DB - OpenUCT DO - 10.1186/s13643-016-0219-3 DP - University of Cape Town J1 - Systematic reviews KW - Cerebral Palsy KW - Caregiver burden/strain KW - Outcome measurement KW - Psychometric properties KW - Evaluation KW - Systematic review KW - Protocol LK - https://open.uct.ac.za PB - University of Cape Town PY - 2016 SM - 2046-4053 T1 - An evaluation of psychometric properties of caregiver burden outcome measures used in caregivers of children with cerebral palsy: a systematic review protocol TI - An evaluation of psychometric properties of caregiver burden outcome measures used in caregivers of children with cerebral palsy: a systematic review protocol UR - http://hdl.handle.net/11427/19838 ER - en_ZA
dc.identifier.urihttp://dx.doi.org/10.1186/s13643-016-0219-3
dc.identifier.urihttp://hdl.handle.net/11427/19838
dc.identifier.vancouvercitationDambi JM, Jelsma J, Mlambo T, Chiwaridzo M, Dangarembizi-Munambah N, Corten L. An evaluation of psychometric properties of caregiver burden outcome measures used in caregivers of children with cerebral palsy: a systematic review protocol. Systematic reviews. 2016; http://hdl.handle.net/11427/19838.en_ZA
dc.languageengen_ZA
dc.language.rfc3066en
dc.publisherBioMed Centralen_ZA
dc.publisher.departmentDivision of Physiotherapyen_ZA
dc.publisher.facultyFaculty of Health Sciencesen_ZA
dc.publisher.institutionUniversity of Cape Town
dc.rightsCreative Commons Attribution 4.0 International (CC BY 4.0)*
dc.rights.holderDambi et al.
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/en_ZA
dc.sourceSystematic reviewsen_ZA
dc.source.urihttp://systematicreviewsjournal.biomedcentral.com/
dc.subjectCerebral Palsy
dc.subjectCaregiver burden/strain
dc.subjectOutcome measurement
dc.subjectPsychometric properties
dc.subjectEvaluation
dc.subjectSystematic review
dc.subjectProtocol
dc.titleAn evaluation of psychometric properties of caregiver burden outcome measures used in caregivers of children with cerebral palsy: a systematic review protocolen_ZA
dc.typeJournal Articleen_ZA
uct.type.filetypeText
uct.type.filetypeImage
uct.type.publicationResearchen_ZA
uct.type.resourceArticleen_ZA
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