Family experiences and viewpoints of palliative and supportive care for children with cancer: Can we do better?

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dc.contributor.advisorStones, D Ken_ZA
dc.contributor.advisorMeiring, Michelleen_ZA
dc.contributor.authordu Plessis, Johannesen_ZA
dc.date.accessioned2017-09-06T07:07:08Z
dc.date.available2017-09-06T07:07:08Z
dc.date.issued2017en_ZA
dc.description.abstractBackground: The palliative and supportive care needs of children with cancer and their families are unique and require special attention. Children and their families in Africa facing lifethreatening/ life-limiting diseases have unique needs and have the right to achieve effective and evidence-based care. Development of appropriate services sensitive to the needs of families and based on observed evidence has become more and more recognized. As an introduction to develop and improve supportive and palliative care services for children with cancer, families were questioned regarding their experiences and suggestions for improvements. Methods: Sixteen family members of children with cancer and treated at Universitas Academic Hospital, Bloemfontein, South Africa, were questioned regarding their children's standard oncology and supportive/palliative care. Their responses were studied and repeating themes were identified. Results: A number of areas of need were identified: erratic psychosocial support, minimal financial support, poor parental access to basic needs and food provision, preventable errors in procedures and lack of sibling support. Staff were also not always sufficiently equipped to attend to palliative care patients. Conclusions: Supportive and palliative care for children with cancer needs to be improved. Family members are a valuable resource and the interviews identified a number of themes, valuable to consider in the expansion of a supportive/palliative care service. The intension of the study was to create the awareness that by making small and affordable changes, the quality of care that children and families receive can be improved.en_ZA
dc.identifier.apacitationdu Plessis, J. (2017). <i>Family experiences and viewpoints of palliative and supportive care for children with cancer: Can we do better?</i>. (Thesis). University of Cape Town ,Faculty of Health Sciences ,Department of Public Health and Family Medicine. Retrieved from http://hdl.handle.net/11427/25066en_ZA
dc.identifier.chicagocitationdu Plessis, Johannes. <i>"Family experiences and viewpoints of palliative and supportive care for children with cancer: Can we do better?."</i> Thesis., University of Cape Town ,Faculty of Health Sciences ,Department of Public Health and Family Medicine, 2017. http://hdl.handle.net/11427/25066en_ZA
dc.identifier.citationdu Plessis, J. 2017. Family experiences and viewpoints of palliative and supportive care for children with cancer: Can we do better?. University of Cape Town.en_ZA
dc.identifier.ris TY - Thesis / Dissertation AU - du Plessis, Johannes AB - Background: The palliative and supportive care needs of children with cancer and their families are unique and require special attention. Children and their families in Africa facing lifethreatening/ life-limiting diseases have unique needs and have the right to achieve effective and evidence-based care. Development of appropriate services sensitive to the needs of families and based on observed evidence has become more and more recognized. As an introduction to develop and improve supportive and palliative care services for children with cancer, families were questioned regarding their experiences and suggestions for improvements. Methods: Sixteen family members of children with cancer and treated at Universitas Academic Hospital, Bloemfontein, South Africa, were questioned regarding their children's standard oncology and supportive/palliative care. Their responses were studied and repeating themes were identified. Results: A number of areas of need were identified: erratic psychosocial support, minimal financial support, poor parental access to basic needs and food provision, preventable errors in procedures and lack of sibling support. Staff were also not always sufficiently equipped to attend to palliative care patients. Conclusions: Supportive and palliative care for children with cancer needs to be improved. Family members are a valuable resource and the interviews identified a number of themes, valuable to consider in the expansion of a supportive/palliative care service. The intension of the study was to create the awareness that by making small and affordable changes, the quality of care that children and families receive can be improved. DA - 2017 DB - OpenUCT DP - University of Cape Town LK - https://open.uct.ac.za PB - University of Cape Town PY - 2017 T1 - Family experiences and viewpoints of palliative and supportive care for children with cancer: Can we do better? TI - Family experiences and viewpoints of palliative and supportive care for children with cancer: Can we do better? UR - http://hdl.handle.net/11427/25066 ER - en_ZA
dc.identifier.urihttp://hdl.handle.net/11427/25066
dc.identifier.vancouvercitationdu Plessis J. Family experiences and viewpoints of palliative and supportive care for children with cancer: Can we do better?. [Thesis]. University of Cape Town ,Faculty of Health Sciences ,Department of Public Health and Family Medicine, 2017 [cited yyyy month dd]. Available from: http://hdl.handle.net/11427/25066en_ZA
dc.language.isoengen_ZA
dc.publisher.departmentDepartment of Public Health and Family Medicineen_ZA
dc.publisher.facultyFaculty of Health Sciencesen_ZA
dc.publisher.institutionUniversity of Cape Town
dc.subject.otherPalliative Medicineen_ZA
dc.titleFamily experiences and viewpoints of palliative and supportive care for children with cancer: Can we do better?en_ZA
dc.typeMaster Thesis
dc.type.qualificationlevelMasters
dc.type.qualificationnameMPhilen_ZA
uct.type.filetypeText
uct.type.filetypeImage
uct.type.publicationResearchen_ZA
uct.type.resourceThesisen_ZA
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