Informing the measurement of wellbeing among young people living with HIV in sub-Saharan Africa for policy evaluations: a mixed-methods systematic review

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dc.contributor.authorGovindasamy, Darshini
dc.contributor.authorSeeley, Janet
dc.contributor.authorOlaru, Ioana D
dc.contributor.authorWiyeh, Alison
dc.contributor.authorMathews, Catherine
dc.contributor.authorFerrari, Giulia
dc.date.accessioned2020-05-15T10:01:26Z
dc.date.available2020-05-15T10:01:26Z
dc.date.issued2020-05-05
dc.date.updated2020-05-10T06:31:57Z
dc.description.abstractYoung people living with HIV (YPLHIV) in sub-Saharan Africa (SSA) are at high risk of having a poor quality of life. Addressing wellbeing explicitly within HIV/AIDS policies could assist mitigation efforts. However, guidance on wellbeing measures to evaluate policies for YPLHIV is scarce. The aims of this mixed-methods review were to identify: i) key dimensions of wellbeing and ii) wellbeing measures that align to these dimensions among YPLHIV (15–24 years) in SSA. We searched six social science and medical databases, including grey literature. We included studies that examined correlates and lived experiences of wellbeing, among YPLHIV in SSA, from January 2000 to May 2019. Two reviewers independently screened abstracts and full texts and assessed methodological quality of included articles. We analysed quantitative and qualitative data using descriptive and meta-ethnographic approaches, respectively. Thereafter, we integrated findings using a framework approach. We identified 6527 citations. Of these, 10 quantitative and 30 qualitative studies were included. Being male, higher educational status, less stigma and more social support were likely correlates of wellbeing. Themes that shaped experiences suggestive of wellbeing were: 1) acceptance and belonging— stigma, social support; 2) coping; 3) standard of living. Our final synthesis found that the following dimensions potentially characterise wellbeing: self-acceptance, belonging, autonomy; positive relations, environmental mastery, purpose in life. Wellbeing for YPLHIV is multi-dimensional and relational. Relevant measures include the Personal Wellbeing Index, Ryff’s Psychological Wellbeing Scale and Mental Health Continuum Short Form. However, psychometric evaluations of these scales among YPLHIV in SSA are needed.en_US
dc.identifier.apacitationGovindasamy, D., Seeley, J., Olaru, I. D., Wiyeh, A., Mathews, C., & Ferrari, G. (2020). Informing the measurement of wellbeing among young people living with HIV in sub-Saharan Africa for policy evaluations: a mixed-methods systematic review. <i>Health and Quality of Life Outcomes</i>, 18(1), 120. en_ZA
dc.identifier.chicagocitationGovindasamy, Darshini, Janet Seeley, Ioana D Olaru, Alison Wiyeh, Catherine Mathews, and Giulia Ferrari "Informing the measurement of wellbeing among young people living with HIV in sub-Saharan Africa for policy evaluations: a mixed-methods systematic review." <i>Health and Quality of Life Outcomes</i> 18, 1. (2020): 120. en_ZA
dc.identifier.citationGovindasamy, D., Seeley, J., Olaru, I.D., Wiyeh, A., Mathews, C. & Ferrari, G. 2020. Informing the measurement of wellbeing among young people living with HIV in sub-Saharan Africa for policy evaluations: a mixed-methods systematic review. <i>Health and Quality of Life Outcomes.</i> 18(1):120. en_ZA
dc.identifier.issn1477-7525
dc.identifier.ris TY - Journal Article AU - Govindasamy, Darshini AU - Seeley, Janet AU - Olaru, Ioana D AU - Wiyeh, Alison AU - Mathews, Catherine AU - Ferrari, Giulia AB - Young people living with HIV (YPLHIV) in sub-Saharan Africa (SSA) are at high risk of having a poor quality of life. Addressing wellbeing explicitly within HIV/AIDS policies could assist mitigation efforts. However, guidance on wellbeing measures to evaluate policies for YPLHIV is scarce. The aims of this mixed-methods review were to identify: i) key dimensions of wellbeing and ii) wellbeing measures that align to these dimensions among YPLHIV (15–24 years) in SSA. We searched six social science and medical databases, including grey literature. We included studies that examined correlates and lived experiences of wellbeing, among YPLHIV in SSA, from January 2000 to May 2019. Two reviewers independently screened abstracts and full texts and assessed methodological quality of included articles. We analysed quantitative and qualitative data using descriptive and meta-ethnographic approaches, respectively. Thereafter, we integrated findings using a framework approach. We identified 6527 citations. Of these, 10 quantitative and 30 qualitative studies were included. Being male, higher educational status, less stigma and more social support were likely correlates of wellbeing. Themes that shaped experiences suggestive of wellbeing were: 1) acceptance and belonging— stigma, social support; 2) coping; 3) standard of living. Our final synthesis found that the following dimensions potentially characterise wellbeing: self-acceptance, belonging, autonomy; positive relations, environmental mastery, purpose in life. Wellbeing for YPLHIV is multi-dimensional and relational. Relevant measures include the Personal Wellbeing Index, Ryff’s Psychological Wellbeing Scale and Mental Health Continuum Short Form. However, psychometric evaluations of these scales among YPLHIV in SSA are needed. DA - 2020-05-05 DB - OpenUCT DP - University of Cape Town IS - 1 J1 - Health and Quality of Life Outcomes KW - Wellbeing KW - Mental health KW - Dimensions KW - Measurement KW - Young people living with HIV KW - Mixed-methods review KW - Sub-Saharan Africa LK - https://open.uct.ac.za PY - 2020 SM - 1477-7525 T1 - Informing the measurement of wellbeing among young people living with HIV in sub-Saharan Africa for policy evaluations: a mixed-methods systematic review TI - Informing the measurement of wellbeing among young people living with HIV in sub-Saharan Africa for policy evaluations: a mixed-methods systematic review UR - ER - en_ZA
dc.identifier.urihttps://doi.org/10.1186/s12955-020-01352-w
dc.identifier.urihttps://hdl.handle.net/11427/31885
dc.identifier.vancouvercitationGovindasamy D, Seeley J, Olaru ID, Wiyeh A, Mathews C, Ferrari G. Informing the measurement of wellbeing among young people living with HIV in sub-Saharan Africa for policy evaluations: a mixed-methods systematic review. Health and Quality of Life Outcomes. 2020;18(1):120. .en_ZA
dc.language.rfc3066en
dc.publisher.departmentDivision of Child and Adolescent Psychiatryen_US
dc.publisher.facultyFaculty of Health Sciencesen_US
dc.rights.holderThe Author(s)
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/en_US
dc.sourceHealth and Quality of Life Outcomesen_US
dc.source.journalissue1en_US
dc.source.journalvolume18en_US
dc.source.pagination120en_US
dc.source.urihttps://hqlo.biomedcentral.com/
dc.subjectWellbeingen_US
dc.subjectMental healthen_US
dc.subjectDimensionsen_US
dc.subjectMeasurementen_US
dc.subjectYoung people living with HIVen_US
dc.subjectMixed-methods reviewen_US
dc.subjectSub-Saharan Africaen_US
dc.titleInforming the measurement of wellbeing among young people living with HIV in sub-Saharan Africa for policy evaluations: a mixed-methods systematic reviewen_US
dc.typeJournal Articleen_US
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