A comparison of death recording by health centres and civil registration in South Africans receiving antiretroviral treatment

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dc.contributor.authorJohnson, Leigh F
dc.contributor.authorDorrington, Rob E
dc.contributor.authorLaubscher, Ria
dc.contributor.authorHoffmann, Christopher J
dc.contributor.authorWood, Robin
dc.contributor.authorFox, Matthew P
dc.contributor.authorCornell, Morna
dc.contributor.authorSchomaker, Michael
dc.contributor.authorProzesky, Hans
dc.contributor.authorTanser, Frank
dc.contributor.authorDavies, Mary-Ann
dc.contributor.authorBoulle, Andrew
dc.coverage.spatialSouth Africaen_ZA
dc.date.accessioned2016-03-30T10:30:40Z
dc.date.available2016-03-30T10:30:40Z
dc.date.issued2015-12-16
dc.description.abstractIntroduction: There is uncertainty regarding the completeness of death recording by civil registration and by health centres in South Africa. This paper aims to compare death recording by the two systems, in cohorts of South African patients receiving antiretroviral treatment (ART). Methods: Completeness of death recording was estimated using a capture-recapture approach. Six ART programmes linked their patient record systems to the vital registration system using civil ID numbers, and provided data comparing the outcomes recorded in patient files and in the vital registration. Patients were excluded if they had missing/invalid IDs or had transferred to other ART programmes. Results: After exclusions, 91 548 patient records were included. Of deaths recorded in patients files after 2003, 94.0% (95% CI: 93.3-94.6%) were recorded by civil registration, with completeness being significantly higher in urban areas, older adults and females. Of deaths recorded by civil registration after 2003, only 35.0% (95% CI: 34.2-35.8%) were recorded in patient files, with this proportion dropping from 60% in 2004-2005 to 30% in 2010 and subsequent years. Recording of deaths in patient files was significantly higher in children and in locations within 50km of the health centre. When the information from the two systems was combined, an estimated 96.2% of all deaths were recorded (93.5% in children and 96.2% in adults). Conclusions: South Africa’s civil registration system has achieved a high level of completeness in the recording of mortality. However, the fraction of deaths recorded by health centres is low and information from patient records is insufficient by itself to evaluate levels and predictors of ART patient mortality. Previously-documented improvements in ART mortality over time may be biased if based only on data from patient records.en_ZA
dc.identifierhttp://dx.doi.org/10.7448/IAS.18.1.20628
dc.identifier.apacitationJohnson, L. F., Dorrington, R. E., Laubscher, R., Hoffmann, C. J., Wood, R., Fox, M. P., ... Boulle, A. (2015). A comparison of death recording by health centres and civil registration in South Africans receiving antiretroviral treatment. <i>Journal of the International AIDS Society</i>, http://hdl.handle.net/11427/18397en_ZA
dc.identifier.chicagocitationJohnson, Leigh F, Rob E Dorrington, Ria Laubscher, Christopher J Hoffmann, Robin Wood, Matthew P Fox, Morna Cornell, et al "A comparison of death recording by health centres and civil registration in South Africans receiving antiretroviral treatment." <i>Journal of the International AIDS Society</i> (2015) http://hdl.handle.net/11427/18397en_ZA
dc.identifier.citationJohnson L.F., Dorrington R.E., Laubscher R., Hoffmann C.J., Wood R., Fox M.P., Cornell M., Schomaker M., Prozesky H., Tanser F., Davies M.A. and Boulle A. (2015) A comparison of death recording by health centres and civil registration in South Africans receiving antiretroviral treatment. Journal of the International AIDS Society. 18: 20628en_ZA
dc.identifier.ris TY - Journal Article AU - Johnson, Leigh F AU - Dorrington, Rob E AU - Laubscher, Ria AU - Hoffmann, Christopher J AU - Wood, Robin AU - Fox, Matthew P AU - Cornell, Morna AU - Schomaker, Michael AU - Prozesky, Hans AU - Tanser, Frank AU - Davies, Mary-Ann AU - Boulle, Andrew AB - Introduction: There is uncertainty regarding the completeness of death recording by civil registration and by health centres in South Africa. This paper aims to compare death recording by the two systems, in cohorts of South African patients receiving antiretroviral treatment (ART). Methods: Completeness of death recording was estimated using a capture-recapture approach. Six ART programmes linked their patient record systems to the vital registration system using civil ID numbers, and provided data comparing the outcomes recorded in patient files and in the vital registration. Patients were excluded if they had missing/invalid IDs or had transferred to other ART programmes. Results: After exclusions, 91 548 patient records were included. Of deaths recorded in patients files after 2003, 94.0% (95% CI: 93.3-94.6%) were recorded by civil registration, with completeness being significantly higher in urban areas, older adults and females. Of deaths recorded by civil registration after 2003, only 35.0% (95% CI: 34.2-35.8%) were recorded in patient files, with this proportion dropping from 60% in 2004-2005 to 30% in 2010 and subsequent years. Recording of deaths in patient files was significantly higher in children and in locations within 50km of the health centre. When the information from the two systems was combined, an estimated 96.2% of all deaths were recorded (93.5% in children and 96.2% in adults). Conclusions: South Africa’s civil registration system has achieved a high level of completeness in the recording of mortality. However, the fraction of deaths recorded by health centres is low and information from patient records is insufficient by itself to evaluate levels and predictors of ART patient mortality. Previously-documented improvements in ART mortality over time may be biased if based only on data from patient records. DA - 2015-12-16 DB - OpenUCT DP - University of Cape Town J1 - Journal of the International AIDS Society KW - antiretroviral therapy KW - HIV KW - vital statistics registration KW - South Africa LK - https://open.uct.ac.za PB - University of Cape Town PY - 2015 T1 - A comparison of death recording by health centres and civil registration in South Africans receiving antiretroviral treatment TI - A comparison of death recording by health centres and civil registration in South Africans receiving antiretroviral treatment UR - http://hdl.handle.net/11427/18397 ER - en_ZA
dc.identifier.urihttp://hdl.handle.net/11427/18397
dc.identifier.urihttp://www.jiasociety.org/index.php/jias/article/view/20628
dc.identifier.vancouvercitationJohnson LF, Dorrington RE, Laubscher R, Hoffmann CJ, Wood R, Fox MP, et al. A comparison of death recording by health centres and civil registration in South Africans receiving antiretroviral treatment. Journal of the International AIDS Society. 2015; http://hdl.handle.net/11427/18397.en_ZA
dc.languageengen_ZA
dc.publisherJournal of the International AIDS Societyen_ZA
dc.publisher.departmentDepartment of Public Health and Family Medicineen_ZA
dc.publisher.facultyFaculty of Health Sciencesen_ZA
dc.publisher.institutionUniversity of Cape Town
dc.rightsCreative Commons Attribution 3.0 Unported (CC BY 3.0)*
dc.rights.urihttp://creativecommons.org/licenses/by/3.0/en_ZA
dc.sourceJournal of the International AIDS Societyen_ZA
dc.source.urihttp://www.jiasociety.org/index.php/jias
dc.subjectantiretroviral therapy
dc.subjectHIV
dc.subjectvital statistics registration
dc.subjectSouth Africa
dc.titleA comparison of death recording by health centres and civil registration in South Africans receiving antiretroviral treatmenten_ZA
dc.typeJournal Articleen_ZA
uct.type.filetypeText
uct.type.filetypeImage
uct.type.publicationResearchen_ZA
uct.type.resourceArticleen_ZA
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