Community-driven citizen science approach to explore cardiovascular disease risk perception, and develop prevention advocacy strategies in sub-Saharan Africa: a programme protocol

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dc.contributor.authorOkop, Kufre J
dc.contributor.authorMurphy, Kathy
dc.contributor.authorLambert, Estelle V
dc.contributor.authorKedir, Kiya
dc.contributor.authorGetachew, Hailemichael
dc.contributor.authorHowe, Rawleigh
dc.contributor.authorNiyibizi, Jean B
dc.contributor.authorNtawuyirushintege, Selemani
dc.contributor.authorBavuma, Charlotte
dc.contributor.authorRulisa, Stephen
dc.contributor.authorKasenda, Stephen
dc.contributor.authorChipeta, Effie
dc.contributor.authorBunn, Christopher
dc.contributor.authorCrampin, Amelia C
dc.contributor.authorChapotera, Gertrude
dc.contributor.authorKing, Abby C
dc.contributor.authorBanchoff, Ann
dc.contributor.authorWinter, Sandra J
dc.contributor.authorLevitt, Naomi S
dc.date.accessioned2021-10-12T05:22:18Z
dc.date.available2021-10-12T05:22:18Z
dc.date.issued2021-02-26
dc.date.updated2021-02-28T04:18:38Z
dc.description.abstractBackground In sub-Saharan Africa (SSA), which experiences a disproportionately high cardiovascular disease (CVD) burden, population-based screening and prevention measures are hampered by low levels of knowledge about CVD and associated risk factors, and inaccurate perceptions of severity of risk. Methods This protocol describes the planned processes for implementing community-driven participatory research, using a citizen science method to explore CVD risk perceptions and to develop community-specific advocacy and prevention strategies in the rural and urban SSA settings. Multi-disciplinary research teams in four selected African countries will engage with and train community members living in rural and urban communities as citizen scientists to facilitate conceptualization, co-designing of research, data gathering, and co-creation of knowledge that can lead to a shared agenda to support collaborative participation in community-engaged science. The emphasis is on robust community engagement, using mobile technology to support data gathering, participatory learning, and co-creation of knowledge and disease prevention advocacy. Discussion Contextual processes applied and lessons learned in specific settings will support redefining or disassembling boundaries in participatory science to foster effective implementation of sustainable prevention intervention programmes in Low- and Middle-income countries.en_US
dc.identifier.apacitationOkop, K. J., Murphy, K., Lambert, E. V., Kedir, K., Getachew, H., Howe, R., ... Levitt, N. S. (2021). Community-driven citizen science approach to explore cardiovascular disease risk perception, and develop prevention advocacy strategies in sub-Saharan Africa: a programme protocol. <i>Research Involvement and Engagement</i>, 7(Article number: 11), http://hdl.handle.net/11427/35175en_ZA
dc.identifier.chicagocitationOkop, Kufre J, Kathy Murphy, Estelle V Lambert, Kiya Kedir, Hailemichael Getachew, Rawleigh Howe, Jean B Niyibizi, et al "Community-driven citizen science approach to explore cardiovascular disease risk perception, and develop prevention advocacy strategies in sub-Saharan Africa: a programme protocol." <i>Research Involvement and Engagement</i> 7, Article number: 11. (2021) http://hdl.handle.net/11427/35175en_ZA
dc.identifier.citationOkop, K.J., Murphy, K., Lambert, E.V., Kedir, K., Getachew, H., Howe, R., Niyibizi, J.B. & Ntawuyirushintege, S. et al. 2021. Community-driven citizen science approach to explore cardiovascular disease risk perception, and develop prevention advocacy strategies in sub-Saharan Africa: a programme protocol. <i>Research Involvement and Engagement.</i> 7(Article number: 11) http://hdl.handle.net/11427/35175en_ZA
dc.identifier.ris TY - Journal Article AU - Okop, Kufre J AU - Murphy, Kathy AU - Lambert, Estelle V AU - Kedir, Kiya AU - Getachew, Hailemichael AU - Howe, Rawleigh AU - Niyibizi, Jean B AU - Ntawuyirushintege, Selemani AU - Bavuma, Charlotte AU - Rulisa, Stephen AU - Kasenda, Stephen AU - Chipeta, Effie AU - Bunn, Christopher AU - Crampin, Amelia C AU - Chapotera, Gertrude AU - King, Abby C AU - Banchoff, Ann AU - Winter, Sandra J AU - Levitt, Naomi S AB - Background In sub-Saharan Africa (SSA), which experiences a disproportionately high cardiovascular disease (CVD) burden, population-based screening and prevention measures are hampered by low levels of knowledge about CVD and associated risk factors, and inaccurate perceptions of severity of risk. Methods This protocol describes the planned processes for implementing community-driven participatory research, using a citizen science method to explore CVD risk perceptions and to develop community-specific advocacy and prevention strategies in the rural and urban SSA settings. Multi-disciplinary research teams in four selected African countries will engage with and train community members living in rural and urban communities as citizen scientists to facilitate conceptualization, co-designing of research, data gathering, and co-creation of knowledge that can lead to a shared agenda to support collaborative participation in community-engaged science. The emphasis is on robust community engagement, using mobile technology to support data gathering, participatory learning, and co-creation of knowledge and disease prevention advocacy. Discussion Contextual processes applied and lessons learned in specific settings will support redefining or disassembling boundaries in participatory science to foster effective implementation of sustainable prevention intervention programmes in Low- and Middle-income countries. DA - 2021-02-26 DB - OpenUCT DP - University of Cape Town IS - Article number: 11 J1 - Research Involvement and Engagement KW - Community-driven KW - Citizen science KW - Cardiovascular disease KW - Risk perception KW - Community engagement KW - Participatory learning KW - Advocacy KW - Sub-Saharan Africa LK - https://open.uct.ac.za PY - 2021 T1 - Community-driven citizen science approach to explore cardiovascular disease risk perception, and develop prevention advocacy strategies in sub-Saharan Africa: a programme protocol TI - Community-driven citizen science approach to explore cardiovascular disease risk perception, and develop prevention advocacy strategies in sub-Saharan Africa: a programme protocol UR - http://hdl.handle.net/11427/35175 ER - en_ZA
dc.identifier.urihttps://doi.org/10.1186/s40900-020-00246-x
dc.identifier.urihttp://hdl.handle.net/11427/35175
dc.identifier.vancouvercitationOkop KJ, Murphy K, Lambert EV, Kedir K, Getachew H, Howe R, et al. Community-driven citizen science approach to explore cardiovascular disease risk perception, and develop prevention advocacy strategies in sub-Saharan Africa: a programme protocol. Research Involvement and Engagement. 2021;7(Article number: 11) http://hdl.handle.net/11427/35175.en_ZA
dc.language.isoenen_US
dc.language.rfc3066en
dc.publisher.departmentDepartment of Medicineen_US
dc.publisher.facultyFaculty of Health Sciencesen_US
dc.rights.holderThe Author(s)
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/en_US
dc.sourceResearch Involvement and Engagementen_US
dc.source.journalissueArticle number: 11en_US
dc.source.journalvolume7en_US
dc.source.urihttps://researchinvolvement.biomedcentral.com/
dc.subjectCommunity-drivenen_US
dc.subjectCitizen scienceen_US
dc.subjectCardiovascular diseaseen_US
dc.subjectRisk perceptionen_US
dc.subjectCommunity engagementen_US
dc.subjectParticipatory learningen_US
dc.subjectAdvocacyen_US
dc.subjectSub-Saharan Africaen_US
dc.titleCommunity-driven citizen science approach to explore cardiovascular disease risk perception, and develop prevention advocacy strategies in sub-Saharan Africa: a programme protocolen_US
dc.typeJournal Articleen_US
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