'Let Me Be Quiet': The Dilemma of HIV Disclosure

 

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dc.contributor.author Haricharan, Hanne Jensen
dc.date.accessioned 2016-05-25T19:27:23Z
dc.date.available 2016-05-25T19:27:23Z
dc.date.issued 2010
dc.identifier.citation Haricharan, H. J. (2008). Let me be quiet': HIV disclosure, stigma and denial in Imizamo Yethu, Cape Town (Doctoral dissertation, University of Cape Town). en_ZA
dc.identifier.uri http://hdl.handle.net/11427/19862
dc.description.abstract This paper argues for a differentiated approach to understanding disclosure of HIV status in a South African township. It suggests that there are two models of disclosure: partial and full. There are benefits for PLHA in both forms of disclosure resulting in improved health and well-being. Disclosure can also play a role in prevention as it can facilitate initiation of safe sex practices. However, the benefits are limited in the partial disclosure as there are challenges related to health-seeking behaviour, stress release and initiation of safe-sex practices. The paper describes partial disclosure as a dilemma between, on one hand, feeling free from secrecy, improved health and well-being and being able to solicit support, and on the other, fear of stigma and discrimination. It argues that a crucial aspect in the choice between partial and full disclosure is how PLHA deal with stigma and self-stigmatisation, related to a conceptualisation of HIV as a disease the bearers bring unto themselves through 'immoral' behaviour. It suggests that those who chose partial disclosure dealt with stigma through managing their disclosure by seeking out people who were unlikely to stigmatise and likely to be supportive. They dealt with self-stigma through 'insisting on innocence', repositioning themselves within the 'guilty'/'innocent' binary as 'innocent' without challenging the discourse of illness as personal responsibility. For the majority of those who disclosed fully, disclosure was experienced as a dilemma in the same way as for those who disclosed partially. In these cases, the dilemma was resolved by confronting stigma and refuting the stigmatising discourses that link HIV with personal responsibility and morality. Some informants who disclosed fully shortly after the diagnosis did not experience self-stigma and did not fear external stigma because they did not associate HIV with personal responsibility. Finally, this paper concludes that improved disclosure rates as well as a change from partial to a more inclusive or full disclosure is essential to realise the full benefits of disclosure, a change that is linked to challenging the conceptualisation of HIV as a condition linked to personal responsibility and 'immorality'. en_ZA
dc.language eng en_ZA
dc.rights Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International (CC BY-NC-ND 4.0) *
dc.rights.uri http://creativecommons.org/licenses/by-nc-nd/4.0/ en_ZA
dc.title 'Let Me Be Quiet': The Dilemma of HIV Disclosure en_ZA
dc.type Working Paper en_ZA
dc.date.updated 2016-05-25T13:38:11Z
uct.type.publication Research en_ZA
uct.type.resource Research paper en_ZA
dc.publisher.institution University of Cape Town
dc.publisher.faculty Faculty of Humanities en_ZA
dc.publisher.department Centre for Social Science Research(CSSR) en_ZA
uct.type.filetype Text
uct.type.filetype Image
dc.identifier.apacitation Haricharan, H. J. (2010). <i>'Let Me Be Quiet': The Dilemma of HIV Disclosure</i> University of Cape Town ,Faculty of Humanities ,Centre for Social Science Research(CSSR). Retrieved from http://hdl.handle.net/11427/19862 en_ZA
dc.identifier.chicagocitation Haricharan, Hanne Jensen <i>'Let Me Be Quiet': The Dilemma of HIV Disclosure.</i> University of Cape Town ,Faculty of Humanities ,Centre for Social Science Research(CSSR), 2010. http://hdl.handle.net/11427/19862 en_ZA
dc.identifier.vancouvercitation Haricharan HJ. 'Let Me Be Quiet': The Dilemma of HIV Disclosure. 2010 [cited yyyy month dd]. Available from: http://hdl.handle.net/11427/19862 en_ZA
dc.identifier.ris TY - Working Paper AU - Haricharan, Hanne Jensen AB - This paper argues for a differentiated approach to understanding disclosure of HIV status in a South African township. It suggests that there are two models of disclosure: partial and full. There are benefits for PLHA in both forms of disclosure resulting in improved health and well-being. Disclosure can also play a role in prevention as it can facilitate initiation of safe sex practices. However, the benefits are limited in the partial disclosure as there are challenges related to health-seeking behaviour, stress release and initiation of safe-sex practices. The paper describes partial disclosure as a dilemma between, on one hand, feeling free from secrecy, improved health and well-being and being able to solicit support, and on the other, fear of stigma and discrimination. It argues that a crucial aspect in the choice between partial and full disclosure is how PLHA deal with stigma and self-stigmatisation, related to a conceptualisation of HIV as a disease the bearers bring unto themselves through 'immoral' behaviour. It suggests that those who chose partial disclosure dealt with stigma through managing their disclosure by seeking out people who were unlikely to stigmatise and likely to be supportive. They dealt with self-stigma through 'insisting on innocence', repositioning themselves within the 'guilty'/'innocent' binary as 'innocent' without challenging the discourse of illness as personal responsibility. For the majority of those who disclosed fully, disclosure was experienced as a dilemma in the same way as for those who disclosed partially. In these cases, the dilemma was resolved by confronting stigma and refuting the stigmatising discourses that link HIV with personal responsibility and morality. Some informants who disclosed fully shortly after the diagnosis did not experience self-stigma and did not fear external stigma because they did not associate HIV with personal responsibility. Finally, this paper concludes that improved disclosure rates as well as a change from partial to a more inclusive or full disclosure is essential to realise the full benefits of disclosure, a change that is linked to challenging the conceptualisation of HIV as a condition linked to personal responsibility and 'immorality'. DA - 2010 DB - OpenUCT DP - University of Cape Town LK - https://open.uct.ac.za PB - University of Cape Town PY - 2010 T1 - 'Let Me Be Quiet': The Dilemma of HIV Disclosure TI - 'Let Me Be Quiet': The Dilemma of HIV Disclosure UR - http://hdl.handle.net/11427/19862 ER - en_ZA


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Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International (CC BY-NC-ND 4.0) Except where otherwise noted, this item's license is described as Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International (CC BY-NC-ND 4.0)