Experiences of a community-based lymphedema management program for lymphatic filariasis in Odisha State, India: An analysis of focus group discussions with patients, families, community members and program volunteers

 

Show simple item record

dc.contributor.author Cassidy, Tali en_ZA
dc.contributor.author Worrell, Caitlin M en_ZA
dc.contributor.author Little, Kristen en_ZA
dc.contributor.author Prakash, Aishya en_ZA
dc.contributor.author Patra, Inakhi en_ZA
dc.contributor.author Rout, Jonathan en_ZA
dc.contributor.author Fox, LeAnne M en_ZA
dc.date.accessioned 2016-03-08T10:56:17Z
dc.date.available 2016-03-08T10:56:17Z
dc.date.issued 2016 en_ZA
dc.identifier.citation Cassidy, T., Worrell, C. M., Little, K., Prakash, A., Patra, I., Rout, J., & Fox, L. M. (2016). Experiences of a community-based lymphedema management program for lymphatic filariasis in Odisha State, India: An analysis of focus group discussions with patients, families, community members and program volunteers. PLOS Negl Trop Dis, 10(2), e0004424. doi:10.1371/journal.pntd.0004424 en_ZA
dc.identifier.uri http://dx.doi.org/10.1371/journal.pntd.0004424 en_ZA
dc.identifier.uri http://hdl.handle.net/11427/17577
dc.description.abstract Author Summary Around the world 68 million people are infected with lymphatic filariasis (LF), a mosquito-borne disease caused by filarial worms. The parasite can damage patients' lymphatic systems causing pain, infections and swollen limbs, known as lymphedema or, in more advanced stages, elephantiasis. Lymphedema management programs can help patients to deal with the physical and emotional effects of lymphedema and elephantiasis. We held a total of 24 focus groups to discuss the experiences of people with lymphedema in Odisha State, India who participate in such a program. Discussions were held with patients, family members of patients, community members and program volunteers. Significant social, physical and economic difficulties were described by patients and family members, including marriage-related issues, social stigma, and lost workdays. However, the positive impacts of the lymphedema management program were also emphasized, and many family and community members indicated that community members were accepting of patients and had some improved understanding of the cause of the disease. People were able to hold both a 'scientific' and a 'traditional' understanding of LF at the same time. The financial hardships that people described highlight the need for improved economic opportunities for lymphedema-affected patients. Support programs based in the community also have clear social and emotional benefits. There is an urgent need to scale up LF management programs to reduce the suffering of people affected by LF. en_ZA
dc.language.iso eng en_ZA
dc.publisher Public Library of Science en_ZA
dc.rights This is an open-access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited. en_ZA
dc.rights.uri http://creativecommons.org/licenses/by/4.0 en_ZA
dc.source PLOS Neglected Tropical Diseases en_ZA
dc.source.uri http://journals.plos.org/plosntds en_ZA
dc.subject.other Lymphedema en_ZA
dc.subject.other Lymphatic filariasis en_ZA
dc.subject.other Fevers en_ZA
dc.subject.other Hydrocele en_ZA
dc.subject.other Sexual and gender issues en_ZA
dc.subject.other Economic impact analysis en_ZA
dc.subject.other India en_ZA
dc.subject.other Oriyas en_ZA
dc.title Experiences of a community-based lymphedema management program for lymphatic filariasis in Odisha State, India: An analysis of focus group discussions with patients, families, community members and program volunteers en_ZA
dc.type Journal Article en_ZA
uct.type.publication Research en_ZA
uct.type.resource Article en_ZA
dc.publisher.institution University of Cape Town
dc.publisher.faculty Faculty of Health Sciences en_ZA
dc.publisher.department Department of Public Health and Family Medicine en_ZA
uct.type.filetype Text
uct.type.filetype Image


Files in this item

This item appears in the following Collection(s)

Show simple item record

This is an open-access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited. Except where otherwise noted, this item's license is described as This is an open-access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.