Caregivers' experiences with the diagnosis of hearing loss

 

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dc.contributor.advisor Kathard, Harsha en_ZA
dc.contributor.advisor Taljaard, Dunay en_ZA
dc.contributor.author Hagedorn, Elfriede en_ZA
dc.date.accessioned 2015-12-03T14:03:41Z
dc.date.available 2015-12-03T14:03:41Z
dc.date.issued 2015 en_ZA
dc.identifier.citation Hagedorn, E. 2015. Caregivers' experiences with the diagnosis of hearing loss. University of Cape Town. en_ZA
dc.identifier.uri http://hdl.handle.net/11427/15522
dc.description.abstract Knowledge of the impact of a diagnosis of hearing loss in children on their caregivers and the nature of their relationships with professionals during this process is inadequate in South Africa. The purpose of this study was to understand the experiences and perceptions of caregivers of diagnosis of hearing loss in their children. A qualitative, retrospective, narrative inquiry research design was used. Participants who were purposefully selected included one couple and 12 caregivers in the Tshwane Metropolitan area. They were interviewed using an in-depth interview method. The narrative data was subjected to in-depth thematic analysis. Three themes emerged from the data: 1) The catastrophic emotional impact of diagnosis, 2) The good and the bad of professional interaction, 3) Imbalanced relationships, strained resources and resulting identity threats. The discussion focused on the deeply emotional nature of the participants' experiences and the changes that ensued during and following the diagnosis of hearing loss in their relationship with their child and the wider community and how this impacted on their sense of identity. The study concluded that diagnosis has extensive, pervasive and disruptive effects on caregivers and that the professional plays an important role in shaping that experience. It thus makes recommendations for a humanistic, family-centred, paediatric audiology practice. en_ZA
dc.language.iso eng en_ZA
dc.subject.other Audiology en_ZA
dc.title Caregivers' experiences with the diagnosis of hearing loss en_ZA
dc.type Master Thesis
uct.type.publication Research en_ZA
uct.type.resource Thesis en_ZA
dc.publisher.institution University of Cape Town
dc.publisher.faculty Faculty of Health Sciences en_ZA
dc.publisher.department Division of Communication Sciences and Disorders en_ZA
dc.type.qualificationlevel Masters
dc.type.qualificationname MSc en_ZA
uct.type.filetype Text
uct.type.filetype Image
dc.identifier.apacitation Hagedorn, E. (2015). <i>Caregivers' experiences with the diagnosis of hearing loss</i>. (Thesis). University of Cape Town ,Faculty of Health Sciences ,Division of Communication Sciences and Disorders. Retrieved from http://hdl.handle.net/11427/15522 en_ZA
dc.identifier.chicagocitation Hagedorn, Elfriede. <i>"Caregivers' experiences with the diagnosis of hearing loss."</i> Thesis., University of Cape Town ,Faculty of Health Sciences ,Division of Communication Sciences and Disorders, 2015. http://hdl.handle.net/11427/15522 en_ZA
dc.identifier.vancouvercitation Hagedorn E. Caregivers' experiences with the diagnosis of hearing loss. [Thesis]. University of Cape Town ,Faculty of Health Sciences ,Division of Communication Sciences and Disorders, 2015 [cited yyyy month dd]. Available from: http://hdl.handle.net/11427/15522 en_ZA
dc.identifier.ris TY - Thesis / Dissertation AU - Hagedorn, Elfriede AB - Knowledge of the impact of a diagnosis of hearing loss in children on their caregivers and the nature of their relationships with professionals during this process is inadequate in South Africa. The purpose of this study was to understand the experiences and perceptions of caregivers of diagnosis of hearing loss in their children. A qualitative, retrospective, narrative inquiry research design was used. Participants who were purposefully selected included one couple and 12 caregivers in the Tshwane Metropolitan area. They were interviewed using an in-depth interview method. The narrative data was subjected to in-depth thematic analysis. Three themes emerged from the data: 1) The catastrophic emotional impact of diagnosis, 2) The good and the bad of professional interaction, 3) Imbalanced relationships, strained resources and resulting identity threats. The discussion focused on the deeply emotional nature of the participants' experiences and the changes that ensued during and following the diagnosis of hearing loss in their relationship with their child and the wider community and how this impacted on their sense of identity. The study concluded that diagnosis has extensive, pervasive and disruptive effects on caregivers and that the professional plays an important role in shaping that experience. It thus makes recommendations for a humanistic, family-centred, paediatric audiology practice. DA - 2015 DB - OpenUCT DP - University of Cape Town LK - https://open.uct.ac.za PB - University of Cape Town PY - 2015 T1 - Caregivers' experiences with the diagnosis of hearing loss TI - Caregivers' experiences with the diagnosis of hearing loss UR - http://hdl.handle.net/11427/15522 ER - en_ZA


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