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Browsing by Author "Tindana, Paulina"

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Community engagement strategies for genomic studies in Africa: a review of the literature

Author: Tindana, Paulina ; de Vries, Jantina ; Campbell, Megan ; Littler, Katherine ; Seeley, Janet ; Marshall, Patricia ; Troyer, Jennifer ; Ogundipe, Morisola ; Alibu, Vincent P ; Yakubu, Aminu ; Parker, Michael Date: 12 Apr 2015 Background: Community engagement has been recognised as an important aspect of the ethical conduct of biomedical research, especially when research is focused on ethnically or culturally distinct populations. While this is a generally accepted ... Read more c b
Engaging research ethics committees to develop an ethics and governance framework for best practices in genomic research and biobanking in Africa: the H3Africa model

Author: Tindana, Paulina ; Yakubu, Aminu ; Staunton, Ciara ; Matimba, Alice ; Littler, Katherine ; Madden, Ebony ; Munung, Nchangwi S ; de Vries, Jantina Date: 18 Oct 2019 Abstract In the past decade, there has been an increase in genomic research and biobanking activities in Africa. Research initiatives such as the Human Heredity and Health in Africa (H3Africa) Consortium are contributing to the ... Read more
Regulation of genomic and biobanking research in Africa: a content analysis of ethics guidelines, policies and procedures from 22 African countries

Author: de Vries, Jantina ; Munung, Syntia N ; Matimba, Alice ; McCurdy, Sheryl ; Ouwe Missi Oukem-Boyer, Odile ; Staunton, Ciara ; Yakubu, Aminu ; Tindana, Paulina ; H3Africa Consortium Date: 02 Feb 2017 Background: The introduction of genomics and biobanking methodologies to the African research context has also introduced novel ways of doing science, based on values of sharing and reuse of data and samples. This shift raises ethical challenges ... Read more c b

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