Browsing by Subject "family"

Now showing 1 - 4 of 4
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    Care Through Family: a conceptual model of children’s nursing care
    (2021) North, Natasha; Leonard, Angela; Bonaconsa, Candice; Coetzee, Minette
    This project aimed to work with nurses to describe and document their practice. Nurse researchers from CNPDI worked with five teams of nurses in diverse paediatric settings in southern Africa to develop detailed descriptions of how nurses involve families in the care of their hospitalised child. We observed care and interviewed nurses and families to develop detailed descriptions of practice. We used visual research methods including graphic facilitation, sociograms and photographic elicitation to construct a detailed picture of routines, activities and environments. Holistic accounts of ‘real’ nursing practices were constructed through 1:1 and group interviews, exploring the underlying rationales and values. Comprehensive case study reports were produced for each setting and reviewed by key nurse participants. Together, researchers and nurses developed statements reflecting the model of care. After analysis of the data we constructed a description of nursing practice in the form of a model of nursing care which we call ‘Care Through Family’. The model is ordered around six themes. Each theme has a guiding principle, in the form of an illustrative statement reflecting the philosophies of care observed. Implementation of the model is supported by a self-assessment tool to guide nursing teams through a facilitated process of reflection and further practice development.
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    Education for All Week 2 - An unexpected arrival
    (2018-06-01) Watermeyer, Brian
    In this video, Brian Watermeyer discusses the adaptations and emotional experiences of families that discover that their new infant has been born with a disability. He explores the different psychological models that have been used to analyse the experiences of families with disabled children, such as the traditional model which often characterises the personal, individual and internal experiences of individuals and has historically characterised family experiences of living with a disabled child in negative ways, while paying less attention to the structural injustices that serve to exclude people with disabilities from support services and essential services. He then discusses a second approach, named the Family Support model, which focuses instead on the support needs of families with a disabled child. It assumes that all families can thrive when provided with the support they need, and focuses more on structural and social barriers that prevent these families from thriving.This is video 3 in week 1 of the Education for All MOOC.
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    Partitioning the Heritability of Tourette Syndrome and Obsessive Compulsive Disorder Reveals Differences in Genetic Architecture
    (2013) Davis, Lea K; Yu, Dongmei; Keenan, Clare L; Gamazon, Eric R; Konkashbaev, Anuar I; Derks, Eske M; Neale, Benjamin M; Yang, Jian; Lee, S Hong; Evans, Patrick; Barr, Cathy L; Bellodi, Laura; Benarroch, Fortu; Berrió, Gabriel Bedoya; Bienvenu, Oscar J; Bloch, Michael H; Blom, Rianne M; Bruun, Ruth D; Budman, Cathy L; Camarena, Beatriz; Campbell, Desmond; Cappi, Carolina; Cardona Silgado, Julio C; Cath, Danielle C; Cavallini, Maria C; Chavira, Denise A; Chouinard, Sylvain; Conti, David V; Cook, Edwin H; Coric, Vladimir; Cullen, Bernadette A; Deforce, Dieter
    The direct estimation of heritability from genome-wide common variant data as implemented in the program Genome-wide Complex Trait Analysis (GCTA) has provided a means to quantify heritability attributable to all interrogated variants. We have quantified the variance in liability to disease explained by all SNPs for two phenotypically-related neurobehavioral disorders, obsessive-compulsive disorder (OCD) and Tourette Syndrome (TS), using GCTA. Our analysis yielded a heritability point estimate of 0.58 (se = 0.09, p = 5.64e-12) for TS, and 0.37 (se = 0.07, p = 1.5e-07) for OCD. In addition, we conducted multiple genomic partitioning analyses to identify genomic elements that concentrate this heritability. We examined genomic architectures of TS and OCD by chromosome, MAF bin, and functional annotations. In addition, we assessed heritability for early onset and adult onset OCD. Among other notable results, we found that SNPs with a minor allele frequency of less than 5% accounted for 21% of the TS heritability and 0% of the OCD heritability. Additionally, we identified a significant contribution to TS and OCD heritability by variants significantly associated with gene expression in two regions of the brain (parietal cortex and cerebellum) for which we had available expression quantitative trait loci (eQTLs). Finally we analyzed the genetic correlation between TS and OCD, revealing a genetic correlation of 0.41 (se = 0.15, p = 0.002). These results are very close to previous heritability estimates for TS and OCD based on twin and family studies, suggesting that very little, if any, heritability is truly missing (i.e., unassayed) from TS and OCD GWAS studies of common variation. The results also indicate that there is some genetic overlap between these two phenotypically-related neuropsychiatric disorders, but suggest that the two disorders have distinct genetic architectures.
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    'We are actually raising South Africans''. Raising immigrant families: The parenting experiences of Zimbabweans in South Africa
    (2019) Finos, Shuvai T.; Tame, Bianca
    South Africa is the most popular international destination for Zimbabwean migrants escaping the economic crisis of their country. It has been estimated that by 2016, one and a half million Zimbabwean nationals were living in South Africa. However, little research explores the lived experience of Zimbabweans in South Africa in the context of family. This is despite scholars highlighting an increase in family migration from Zimbabwe to South Africa in recent years. This study explores the parenting experiences of immigrant Zimbabwean parents raising their children in South Africa. Specifically, it investigates the ways in which raising children in a different country and cultural context influences parents’ understanding of and approaches to parenting. Nine Zimbabwean mothers and fathers living with their spouses and children in Cape Town participated in a qualitative study, with semi-structured interviews. Data was collected and analysed using thematic analysis. The study found that the participants’ overarching experience of parenting was that they were ultimately raising ‘South Africans’. Participants framed their children’s ‘South African-ness’ positively, identifying the children as cosmopolitan and empowered, which they celebrated. However, they also lamented the children’s loss of identity as the most problematic aspect of ‘South African-ness’. To navigate the resultant tensions, participants relaxed some of their existing beliefs while simultaneously implementing measures to reinforce some non-negotiable values and beliefs in their children. This dissertation argues that while parents’ understanding of parenting is strongly rooted in their cultural background and values, they adapt their parenting styles and practices according to what they calculate will enable their families to thrive. The study adds to the body of knowledge on immigrant Zimbabwean families who have become part of South African society. This is especially relevant in light of the South African government’s laudable initiatives towards regularising the stay of Zimbabweans in South Africa, such as the Dispensation of Zimbabweans Project (DZP) of 2009 and its successive permits. This study can therefore contribute to the body of knowledge that informs the ways in which South Africa can continue to respond to the reality of migration from Zimbabwe.