Browsing by Author "le Roux, Marlene"

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    TEDI 4 Week 2 - Facilitating Learning
    (2019-06-01) le Roux, Marlene
    In this video, Marlene le Roux, a polio survivor from Wellington and the CEO of Artscape, talks about her son Adam who suffered from cerebral palsy. She discusses her experiences of facilitating learning for Adam. She discusses her challenges in feeding and caring for her son, navigating a difficult medical system that provided information in a fragmented and often contradictory way, and the dehumanising way children with disabilities were treated and talked about in the medical system. She discusses the ways in which caregivers need to be incorporated into the care and treatment process, and the importance of treating a child with disabilities with respect and kindness.
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    TEDI 4 Week 4 - Developing an Ethics of Care - A Parent's Perspective
    (2019-06-01) McKenzie, Judith; le Roux, Marlene
    In this video, Judith McKenzie and Marlene le Roux discuss the mother's perspective of parenting a child with severe to profound intellectual disability. They share their experiences with the medical system and the mental care system and the inability of these institutions to provide personal support and emotional care. Marlene le Roux speaks of the importance of structure, engagement, routine, and community care and support from the community in raising a child with disabilities. Marlene also speaks of the importance of respecting and honouring the professional caregivers who provided care support for her disabled son. Lastly, she discusses how her son contributed to the family and to her life.